Went to visit Rob this morning. Things are not good for him. Though the broken skin he went into the hospital for has healed his lower right back is very soft like a marshmallow and a little off-colour. And just pressing lightly this area is excruciating for him. But for some reason his condition is still not seen as a medical one.
All that has been done for him is to ply him with more pain killers and other stuff. His pain levels are only low when he does not speak or move. Still no moves to transfer him to an appropriate hospital. Just plans to send him up to the mountains again till things are set up to return home or for him and me to agree that the best place for him is to rot in some institution.
Just before the Christmas holidays there were a couple of surgeons interested in helping Rob. But now everything has gone dead silent. No replies to emails or phone messages. Nothing.
I will probably bring him home on Thursday or Friday to take care of his back since it is obvious it is getting worse with nothing having been done to deal with the cause of the problem. Dead weight, atrophied, contracted useless legs. He has now spent two whole weeks laying on his left side. Tolerates for an hour some time on the right. How cruel. And now with his back apparently going soggy there is no way he can sit in his wheelchair. He could barely sit in it before going to the hospital the pressure of his back being forced against the back cushions due to the worsening twist in his hips was so intense.
But the consensus of a handful of doctors is that removing his legs will either kill him (which it won't and since Rob doesn't want to live does he really care now.) or give him more pain (which is a risk he is willing to take as a 40 yr old. Anyone would think he was a small child). But apparently it is preferable he spend the rest of his life potentially bed ridden, wearing nappies and doped up which will inevitably cut very short his life.
Feel free to contact our advocate Denise Roberts if there is anyone out there that can help. She can be contacted at:
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| Rob's skin 5th January, 2013. Note how wrinkled and fragile. |
Phone: (02) 47 322363
Email: pdrc@pdrc.org.au
Web: pdrc.org.au
Will post more on Wednesday.
Take care all.
Sam
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