About Me

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Born 1969 England. Arrived in Australia 1972. Single. No children. Partially disabled from severe osteoporosis, pituitary gland tumor (benign), myopathy and Ehlers-Danlos Syndrome (hypermobile in every joint). 18 yrs caring for my quadriplegic cerebral palsy friend, Rob. Ceramic artist www.sam-davies.blogspot.com

Saturday, June 22, 2013


As I've missed out roasting marshmallows over a camp fire I had an idea last night to melt them over a candle's flame on my tray while sitting in our chilly sun room. (1:44min)

 A flaming marshmallow

Video with the lights off (1:40min)

A picture says a thousand words.

Wednesday, June 19, 2013

As Sam and I live close to a 24/7 out door pizza place we decided yesterday to order a Supreme around about midnight taking our two dogs with us. It was a great evening. Dogs behaved themselves and despite it having poured down with rain a couple hours earlier - threatening our night snack plans - the clouds dispersed and the stars reappeared. All we need and want is so close to where we now live. And since we sleep at any hour of the night or day it's great to be able to drive my electric wheelchair and dine out at night at any time we choose.

After the success of the percutaneous tendon release on the 4th of June that has rid me of my lower right back pressure area and resulting sores I will be allowed further tendon, muscle and possible ligament release of the hips at the tops of my legs. I can't wait. I am in so much pain and Sam still can not access me properly for cleaning.
With the success of the first surgery that has rid me of the pressure area, straightened greatly the twist in my lower back and relieved my penis of being crushed I am positive the next surgery will also be a huge success and allow me to straighten the tops of my legs to a large degree. And I've only four weeks to wait!! I just want all this out of the way ASAP so I can have a life and forget about my life and that of Sam's revolving around my legs and what they prevent me/him doing.

Monday, June 17, 2013

Before and after my partial percutaneous tendon release surgery on the 4th of June, 2013. Twist in my hip is greatly reduced and the pressure area has mostly cleared up.
Six days after surgery
I've an appointment with the orthopaedic surgeon on the 19th of June for a follow up and consideration of further surgery to release other tendons and/or ligaments that cause my knees to come to my chest when I lay down. These tendons also prevent me straightening the tops of my legs which make it impossible for anyone to me clean me easily or properly.