About Me

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Born 1969 England. Arrived in Australia 1972. Single. No children. Partially disabled from severe osteoporosis, pituitary gland tumor (benign), myopathy and Ehlers-Danlos Syndrome (hypermobile in every joint). 18 yrs caring for my quadriplegic cerebral palsy friend, Rob. Ceramic artist www.sam-davies.blogspot.com

Sunday, August 4, 2013

(6 part video with transcript. 4/08/2013. Unfortunately, Blogger will not allow videos over 100MB thus 6 videos. Thank you for your patience.)
Part 1

"My lower legs have ruined my life. Because of my lower legs I can't sleep in a bed; I can't be comfortable in any kind of wheelchair. I...for the physical care I do need it's far, far more complicated that it needs to be. The doctors know that by having me keep..." cont. Part 2
Part 2
"...that by having me keep my lower legs they are keeping me immobile. They are keeping me from sleep; from exercise; from social interaction; from so many things that we as humans think of as inalienable rights. But those rights have been taken away. And these rights have been calmly brushed away with the excuse that, "Oh, if we take your legs off, your lower legs off, you're going to be in a lot of pain..." cont. Part 3.
Part 3
"...your lower legs off, you're going to be in a lot of pain". They know I'm already in pain. I'm in so much physical and emotional pain that I want to die. That's why I came to Penrith...to give life one more chance. But as soon as I mentioned amputation so that I could sleep in a bed; so that I could roll over; so that I could have a great deal more independence, they said, "Oh, nobody would ever even consider that". Well, I..." cont. Part 4.
Part 4
"...nobody would ever even consider that". Well, I also had a talk to another doctor. He could see the value of taking away my lower legs so that I could move and do all the things I've already mentioned. But he's not allowed to go near me. These doctors are deliberately keeping me immobile. And they're not only ruining my life, they're destroying the life and health of my carer. Without my lower legs gone I will not live long enough and I get to see my carer..." cont. Part 5.
Part 5
"...long enough. And I get to see my carer die slowly as well, with no hope; with no happiness; with no desire for anything but death too. The Minister for Health, The Honourable "Laugh, Laugh" Skinner won't help. The HCCC (Health Care Complaints Commission) won't help and any organisations that have tried to help me with my situation have basically been told to leave this alone or you're in trouble. The Australian health system..." cont. Part 6
Part 6
The Australian health system is keeping me immobile.
"The Australian health system is keeping me immobile. And they're not just doing it to me. They're doing it to thousands of others like me and they're ruining the lives of their families and friends who care about them in the process.
Can we as human beings - as Australians - sit idly by while this is happening to thousands of people all over, even though we know it can be fixed! Come on people. What's going on here?!"

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